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Our Curse

Our Curse

APPROPIATE

2013 / 27min.

Rating5.8

Genres

Documentary

Synopsis

The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.

Directors

Tomasz Śliwiński

Actors

Tomasz Śliwiński Leo Hueckel-Śliwiński Magda Hueckel

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